“This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me,” Dion said via Instagram. “As the road to resuming my performing career continues, I have realized how much I have missed it, of being able to see my fans. During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis.”

Celine Dion rehearses for the 2019 Macy’s Thanksgiving Day Parade.Virginia Sherwood / Getty Images

Dion hasn’t publicly talked much about what she’s experiencing outside of that first announcement in 2022, but her health was the subject of speculation in late 2023 when a French-language interview with her sister Claudette led to renewed headlines about the Grammy-winning singer’s condition.

“She is working hard, but she does not have control of her muscles,” her older sister told 7 Jours magazine in a Dec. 12 interview. There was no further information, and Céline Dion’s representatives did not respond to a CBC News request for comment.

What is ‘I Am: Celine Dion’ about?
“This intimate exploration takes viewers on a journey inside Celine’s past and present as she reveals her battle with stiff person syndrome (SPS) and the lengths she has gone to continue performing for her beloved and loyal fans,” reads a press release about the project shared on Dion’s website.

“From visiting her couture touring wardrobe and personal effects to spending time in the recording studio, the documentary captures a global megastar’s never-before-seen private life. An emotional, energetic, and poetic love letter to music, ‘I Am: Celine Dion’ captures more than a year of filming as the legendary singer navigates her journey toward living an open and authentic life amidst illness.”